One Year Later (Aggressive MS-Paralysis & Blindness)

In December 2018, my life was flipped completely upside down. We never know what the future holds, but most people probably wouldn’t imagine paralysis or blindness in their future. Life changes so quickly, and I have definitely learned that the hard way during this past year.

In January 2019, the doctors told me that I might be spending life blind and in a wheelchair. They were hoping to just stop the attack that was ravaging my body.

One year later, not only am I alive (we later found out that the doctors initially thought I might have Fulminant MS- which usually results in death within a few weeks) but I have recovered more than the doctors imagined. I have surpassed all their expectations, not only regaining the ability to walk (while not 100% normally yet, I use a cane outdoors or for longer distances) but I have also regained about 80% of my vision. I’m so happy to finally be able to make and share my 1-year update!

The severity of my vision loss really had my doctors stumped. While Optic Neuritis is a common condition that many with MS experience, it usually only affects one eye at a time. My case was so uncommonly severe, that I experienced blindness (worse than a 20/600 vision) in both eyes simultaneously. From about the end of December 2018, to about March 2019, my vision looked something like this(20/600):


Photo source

Check out my video about my vision loss here:

In may 2019, my vision had improved to about a 20/225. In September, it was a 20/125. This past January, it now tests at about a 20/70. So, at this point, i am unfortunately visually impaired. I’m not able to drive, and I certainly can’t do makeup fully. Basically, I can see enough to mostly see what I’m applying and where, but all the detail, such as exactly what shade or how it looks, I’m not able to see. Right now, my vision looks a little something like this simulation of 20/70 vision:

So I can see people and objects, but nothing is clear. It’s sort of like there’s a foggy filter over my eyes at all times; everything is a little blurry, and colours aren’t very sharp. I can see bright or high contrast colours, but distinguishing between shades is difficult.

As for how much vision I will regain, we really don’t know. The doctors can’t tell me that I will regain my full vision, but they also can’t tell me that I won’t. That’s the hope I’m choosing to hold on to. The fact that my recovery has blown the doctors away gives me that hope. One year later,

my MS has completely stopped- my brain scans show that the disease has stopped as of July 2019 and I am now in remission, continuing to get better every week!

As for my career as a makeup artist and blogger, I really don’t know what’s going to happen. Currently, I can only see enough to do very basic makeup, nothing like I used to do. However, I refuse to let this make me give up everything I love to do. So I’m going to try my best to start posting again, though it may not be beauty reviews and tutorials. You can expect to see lifestyle-related content, MS-related content (such as my journey learning to walk again) and more food & nutrition-related content.

I just finished the Plant Based Nutrition Course from Cornell University online, from Doctor T. Colin Campbell, the founder of the Centre for Nutrition Studies at Cornell University. I now have a certificate n Plant-Based Nutrition, and am looking forward to continuing my studies to get a certification in nutrition!

Nutrition has been such a pivotal part of my recovery, as studies by Dr Roy Swank and Dr John Mcdougall have shown that nutrition is the most effective treatment for an autoimmune diseases like Multiple Sclerosis – and I am walking (literally) proof of this! I can’t wait to start sharing nutrition and recipe ideas with you all!

I’m able to start posting again on my main Instagram page, raincoatsbeauty as well as my food page raincoatesfoodie – make sure to join me there!

Thank you so much to everyone for all the support, and kind messages. It’s been a difficult year, but things are looking up and I can’t wait to see what the future holds!

P.S. I hope everyone is staying safe during these frightening and unprecedented times. Especially to my fellow chronic-illness fighters and immunocompromised friends – please stay safe and take whatever precautions are necessary.

3 Comments

  1. Tina Perraud
    March 28, 2020 / 10:26 pm

    After an MRI i was diagnosed of MULTIPLE SCLEROSIS. After years on medications, symptoms worsened with tremors on my right hand, numbness and tingling, muscle weakness and loss of speech. Fortunately last year, I learnt about Rich Herbal Gardens (ww w. richherbalgardens. c om) and their effective MS Formula treatment through an MS support group on facebook the Multiple Sclerosis treatment made a great difference, most of my symptoms including balance, weakness, falling alot and others gradually disappeared. I improved greatly over the 4 months treatment, its been a year since the treatment, i have no symptoms. I have a very good quality of life and a great family!

  2. Deb Decker
    May 13, 2020 / 11:07 am

    It’s wonderful to hear how great you’ve been doing. You are a very strong person, your parents must be so proud and relieved as well. And your boyfriend is an angel to hang in and fight with you. My husband was diagnosed with MS IN 2012 and is only able to move to and from his wheelchair by dragging his feet. He cannot stand unassisted anymore and his eyesight is affected now. We moved to a one level home 3 years ago which is a lifesaver for me! I am 64, he is 62. He has a strong will and motivation to eat healthier and try to exercise which he does several times a day. He’s tried a few ms drugs, including the one that you were on, but was too hard on his immune system. So thankful to hear it worked for you. You are right about the eyesight being hardest to deal with, since his computer is his lifeline to the world. I hope you continue to improve, I had never heard of someone being affected as quickly and as seriously as you were. God bless and thank you for sharing your story!

    Deb Decker
    Bloomington, IL.

    • June 19, 2020 / 2:55 pm

      Hi Deb, thank you so much for your knd words and sharing you & your husband’s story. My thoughts and best wishes to you both.MS is a truly devastating disease, and every single day is a battle. your husband is a warrior, and the best thing he can do is try to remain determined and strong-minded in this fight, giving his body he nutrients to help heal and fight the battle I just received a certificate in Plant-Based Nutrition from eCornell, and learned so much about nutrition for disease management and prevention. I had no idea until this how much research into nutrition and its importance for auto immune diseases like MS there actually is. I am walking (literally) proof of how much nutrition can help us to fight MS. My doctors said I’d probably be blind and in a wheelchair for the rest of my life. Yet here I am, walking again ans now at 20/50 vision with my MS in full remission. If you or your husband ever need any help, have any questions or just want some resources/advice on nutrition, please don’t hesitate to reach out! My email is raincoatesbeauty@gmail.com – you can also find this through the “contact me” form found on my blog.

      Take care <3

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